586 posters, 8 topics, 23 sessions, 1,077 authors, 622 institutions

ISQua's 40th International Conference 2024

24th - 27th September 2024 | Istanbul, Türkiye

P431

Widening cancer patient experience assessment in Europe: Translation and adaptation of the Swiss Cancer Patient Experiences Questionnaire into European Spanish, Greek, Polish & Slovene

Preview of Widening cancer patient experience assessment in Europe: Translation and adaptation of the Swiss Cancer Patient Experiences Questionnaire into European Spanish, Greek, Polish & Slovene

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Poster Presenter

Carola Orrego

Authors

Mariana Aparicio Betancourt, Helena Vall-Roqué, Chantal Arditi, Carola Orrego

Affiliations

Avedis Donabedian Research Institute (FAD), Barcelona, Spain; Universitat Autònoma de Barcelona (UAB), Barcelona, Spain, Avedis Donabedian Research Institute (FAD), Barcelona, Spain; Universitat Autònoma de Barcelona (UAB), Barcelona, Spain; Network for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), Spain, Department of Epidemiology and Health Systems, Center for Primary Care and Public Health (Unisanté), University of Lausanne, Lausanne, Switzerland

Part of Topic

Co-production - Creating a patient-centred healthcare service

Widening cancer patient experience assessment in Europe: Translation and adaptation of the Swiss Cancer Patient Experiences Questionnaire into European Spanish, Greek, Polish & Slovene

M. Aparicio Betancourt1,2, H. Vall-Roqué1,2,3, C. Arditi4 and C. Orrego1,2,3

1 Avedis Donabedian Research Institute (FAD), Barcelona, Spain

2 Universitat Autònoma de Barcelona (UAB), Barcelona, Spain

3 Network for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), Spain

4 Department of Epidemiology and Health Systems, Center for Primary Care and Public Health (Unisanté), University of Lausanne, Lausanne, Switzerland

INTRODUCTION AND OBJECTIVE

Patient experience is a key component of healthcare quality and fundamental for the delivery of person- and family-centered care. However, cross-cultural cancer-specific patient reported experience measures (PREMs) are scarce.

The SCAPE questionnaire (Arditi et al., 2022), originally adapted from the 2016 version of the NHS Cancer Patient Experience Survey developed in the UK (NHS, 2023), evaluates patient’s experience with cancer care throughout the care pathway and has been translated and adapted into Swiss Italian, French, and German, and English.

Objective: To translate and culturally adapt the Swiss Cancer Patient Experiences (SCAPE) questionnaire (version 2023) into European Spanish, Greek, Polish and Slovene within the context of LIVERATION (https://liveration.eu), a European clinical trial evaluating the effectiveness of a cancer liver surgery.

METHODS

1) review and adaptation of the English version of the SCAPE questionnaire for the LIVERATION project.

2) Forward-backward translation and adaptation of the questionnaire consisting of a multi-step, dynamic, and centralized review process:

RESULTS AND DISCUSSION

The questionnaire has been translated and culturally adapted into European Spanish, Greek, Polish and Slovene.

Two versions have been developed:

- A shorter version specifically adapted for the LIVERATION project.

- A version akin the SCAPE English 2023 version.

The questionnaire is already being used for the LIVERATION project: either in its final form or in the pre-testing stage.

Understandability, inaccuracies, ambiguities and discrepancies are being reviewed by a central body and discussed throughout the process in an iterative manner, as needed.

Lessons learned:

- Professional healthcare translators familiar with the process of translation and adaptation of instruments are recommended.

- Some patients have expressed that the questionnaire is too long (83 and 92 questions for the LIVERATION and original versions, respectively).

CONCLUSIONS

- The dynamic process followed has effectively guided the cross-cultural translation and adaptation of the questionnaire.

- The final versions of the questionnaire will be made available to researchers and practitioners interested in evaluating cancer patients’ experiences to improve quality of care.

- Future work will focus on evaluating the psychometric properties of the instrument.

REFERENCES

Arditi, C., Eicher, M., Colomer‐Lahiguera, S., Bienvenu, C., Anchisi, S., Betticher, D., ... & Peytremann‐Bridevaux, I. (2022). Patients' experiences with cancer care in Switzerland: Results of a multicentre cross‐sectional survey. European Journal of Cancer Care, 31(6), e13705.

NHS England (2023, July 19). National Cancer Patient Experience Survey. https://www.ncpes.co.uk/

CONTACT INFORMATION

Carola Orrego, PhD: corrego@fadq.org