Why this research?

The brain can be injured in many ways. When it happens because of a hit or push, it is called a traumatic brain injury (TBI).

Many economic, social, and cultural factors are important for people’s brain health after injury. We wanted to learn what people think and need in relation to these factors. 

How did we do it?

We surveyed many people with brain injuries, their families, clinicians, scientists, and community leaders. They shared their perspectives and what they want to know.

We analyzed their responses and needs, and shared them with a team to think about what can be done in the short and long term.

We met for a number of discussion rounds, where we looked at what each group prioritized and to find common ground for action.

What did we find?

Among all groups, the highest priorities were access to benefits, income, and formal education.

Patients and family members uniquely prioritized trust in relationships.

We created a resource to reflect on what people told us and shared it with decision-makers so that they can be made aware of and act on peoples’ priorities.