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Alzheimer's Association International Conference 2026

July 12-15, 2026 | London, United Kingdom, and Online

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6833

Advancing Health Equity Through Storytelling: A Community-engaged Approach To Culturally Responsive Alzheimer’s Resource Development

Part of Topic

Title:

Advancing Health Equity Through Storytelling: A Community-engaged Approach to Alzheimer’s Disease Resource Co-Development

Takeaway: 
A community-engaged research approach was used to spark real conversations, drive community-informed solutions, and co-design a resource toolkit. 
 
Text Summary:
I. Hispanics/Latinos (H/Ls) are at an increased risk for Alzheimer’s disease and related dementias (AD/ADRDs) in the United States, but are excluded and underrepresented in brain health research. This warrants innovative, community-centered approaches
II. Our Engaging Communities of Hispanics/Latinos for Aging Research (ECHAR) Network co-developed an AD/ADRD telenovela series “Recuerdos de Mi Abuelo.” We conducted focus groups (n=62) in English (k=4) and Spanish (k=4), to identify information that could supplement the telanovelas to increase their effectiveness in raising brain health and AD/ADRD awareness among H/Ls.
III. We triangulated themes identified from the focus groups with input from our Community Action Board members and participant observation at public screenings of the series. This led to the iterative co-development of a multimedia toolkit (familiaremembers.com), including AD/ADRD tools such as FAQ videos, infographics, and a risk calculator.

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